Stories of Hope
A Young Californian
Our son suffered a stroke at birth. Most people don't associate strokes with children but in fact 1 out of every 4,000 live births result in a stroke victim. (see chasa.org for more data) Our son has hemiplegia and cerebral palsy. Every little movement and every little gesture requires a tremendous amount of energy and thought as his body is not symetrical and is essentially paralized on one side. He suffers significant speech & language delays, visual impairments, developmental delays and a seizure disorder because of the extent of the damage to his brain.
His life has been forever changed as has ours as parents. Not a day goes by that we don't think about what might have been and not a day goes by that we don\'t count our blessings. He is a shining star that is charasmatic, loving and naughty. But life is a HUGE challenge. Medicine, hospitals, tests and hours of therapy are now the norm for our family. We belong to a network of other special needs families, some of which could also benefit from this research.
We work hard locally and as a part of a national organization, Children's Hemiplegia and Stroke Association, to increase awareness and funding for pediatric strokes. There you would find a huge group of families whose lives could forever be changed by continued stem cell research and eventually a treatment for our children.
Our family will strongly support this initiative and we will encourage others to do so as well. Our son deserves every opportunity and there is now light at the end of the tunnel - stem cell treatment.